The Responsiveness, Content Validity, and Convergent Validity of the Measure Yourself Concerns and Wellbeing (MYCaW) Patient-Reported Outcome Measure

You are here

OBJECTIVE: Measure Yourself Concerns and Wellbeing (MYCaW) is a patient-centered questionnaire that allows cancer patients to identify and quantify the severity of their "concerns" and "wellbeing," as opposed to using a predetermined list. MYCaW administration is brief and aids in prioritizing treatment approaches. Our goal was to assess the convergent validity and responsiveness of MYCaW scores over time, the generalizability of the existing qualitative coding framework in different complementary and integrative oncology settings and content validity. METHODS: Baseline and 6-week follow-up data (n = 82) from MYCaW and FACIT-SpEx questionnaires were collected for a service evaluation of the Living Well with the Impact of Cancer course at Penny Brohn Cance Care. MYCaW convergent validity was determined using Spearman's rank correlation test, and responsiveness indices assessed score changes over time. The existing qualitative coding framework was reviewed using a new data set (n = 158) and coverage of concern categories compared with items of existing outcome measures. RESULTS: Good correlation between MYCaW and FACIT-SpEx score changes were achieved (r = -0.57, P>.01). MYCaW Profile and Concern scores were highly responsive to change: standardized response mean = 1.02 and 1.08; effect size = 1.26 and 1.22. MYCaW change scores showed the anticipated gradient of change according to clinically relevant degrees of change. Categories, including "spirituality," "weight change," and "practical concerns" were added to the coding framework to improve generalizability. CONCLUSIONS: MYCaW scores were highly responsive to change, allowing personalized patient outcomes to be quantified; the qualitative coding framework appears generalizable across different integrative oncology settings and has broader coverage of patient-identified concerns compared with existing cancer-related patient-reported outcome measures.
Title of abstract: 
The Responsiveness, Content Validity, and Convergent Validity of the Measure Yourself Concerns and Wellbeing (MYCaW) Patient-Reported Outcome Measure
Author: 
Jolliffe R, Seers H, Jackson S, Caro E, Weeks L, Polley MJ
Affiliations: 
Penny Brohn Cancer Care, University of Granada,Ottawa Integrative Cancer Centre, University of Westminster
Citedate: 
Sunday, November 9, 2014 - 19:00
Citation: 
Integr Cancer Ther. 2015 Jan;14(1):26-34.
Taxonomy: 

CCNM logo

CONNECT WITH US

Talk to a student services advisor today by emailing info@ccnm.edu

The Canadian College of Naturopathic Medicine

Educating naturopathic doctors in North America for almost 40 years

1255 Sheppard Avenue East, Toronto, Ontario M2K 1E2

College: (416) 498-1255 I 1 (866) 241-2266 (toll-free)

Clinic: (416) 498-9763

AANMC
Member of the Association of
Accredited Naturopathic Medical Colleges